Gudrun´s Rett Syndrome Research Trust was founded by the parents of Guðrún Sædal Friðriksdóttir on May 13th 2012.

The Research Trust is a registered charity.

The objectives of the trust is to raise funds to support research and raising awareness in the community on Rett Syndrome and to support Guðrún Sædal Friðriksdóttir which has RTT to pariticipate in a possible treatment or clinical trials.

The trusts representatives are active in trying to get the word of Rett Syndrome and rare diseases in the media and on the table of public authorities and private enterprises.

If you would like to know more about Rett Syndrome in Iceland, establish a contact with the families, doctors or other professionals who have treated girls with Rett Syndrome, please don´t hesitate to send us an email to:


Gudrun´s Rett Syndrome Research Trust
Hjallabrekka 36
200 Kópavogur



Thank you for caring about Rett Syndrome














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