Rett Syndrome Rannsóknarsjóður Guðrúnar (RSRG) afhenti 28. ágúst 2013 þriðja styrk RSRG til rannsókna á Rett Syndrome, alls 6.684 pund til Rett Syndrome Research Trust UK.

Styrkfjárhæðin sem var afhent í ágúst er rausnarlegt framlagi frá Svölunum og vegleg Minningargjöf fjölskyldu Hilmars K. Björgvinssonar, frænda Guðrúnar. Styrktarfélags flugfreyja, Svölurnar, styrku sjóðinn um 1 milljón króna eða 5394 pund og fjölskylda Hilmars var svo yndisleg að vísa mi...

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Rett syndrome, a genetic condition, is perhaps the worst childhood disability as it combines the symptoms of autism, cerebral palsy, Parkinson's disease, epilepsy and anxiety. One little girl with Rett is beating the odds with the help of her mother's strength and courage.

Dr. Bruce Hensel reports for NBC4 News at 5 p.m. on Oct. 2, 2013

http://www.nbclosangeles.com/on-air/as-seen-on/Beating-the-Odds_-One-Girl_s-Struggle-with-Rett-Syndrome_Los-Angeles-226240071.html

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